Bio Assistant Director of the Rutgers DSW, author, clinician, women’s reproductive rights advocate, Canadian girl in the USA...MAMA! Opinions expressed are my own. Tweets 229 Followers 1,4K Following 147 Account created 05-09-2018 16:55:19 ID 1037383689041326080
iPhone : Ria LeBlanc I appreciate your prayers and will likely have to mute this in case hate comes at me, but my heart is only open to a conversation on the issue, and will not change with regard to the careful decision making process and how I feel about this.
iPhone : Ria LeBlanc You are indeed entitled to your opinion and I respect the terror you feel. For me, life was only a route to death for our son. Mamas all around the world are forced to make decisions about care and quality of “life” for their children.
iPhone : Jason Ross Thank you. The misunderstanding has been so poisonous that I’ve had to disengage and step away, both for my sanity and to continue to feel I am honoring my son’s life and death. Thankfully, there has been such a huge outpouring of love too.
iPhone : Middle of the Story🌊 I can relate; I’ve also been told I don’t count. But we both do. You matter. I have a dear friend whose baby had that diagnosis too. I’m so sorry for your loss. Thank you for your support. ❤️
iPhone : 🦄🦄🦄 Thank you! Yesterday was rough but the outpouring of support has really been a buoy. So many more people seem to “get it” like you do, and it helps me find the energy to keep sharing. I am grateful for your support. ❤️❤️
iPhone : Hippocra-Leo-Totl💙nancybroderick1 Thank you, I’m trying! I have had to pull away a bit because there’s been so much hate and misunderstanding, but every time i catch somebody sharing their pain in solidarity it cracks my heart wide open. ❤️
iPhone : Laurie Slicer I had to pull away from Twitter because of some big hate coming at me but I was compelled to respond to you. My heart aches for what you endured and I feel honored by your support and empathy. I’m so sorry for your experience.
iPhone : Sara 📢🌺🐝🦋🐌🌗🦉🕷Miss MonroeSimone McCartney Let me be clear: our son did not have a disorder that you can google and deduce alternate solutions for. Do not allow limited characters to simplify his diagnosis or allow for fantasies of rescue. The decision was what type of death we wanted. #youknowme
iPhone : Let me be clear: our son did not have a disorder that you can google and deduce alternate solutions for. Do not allow limited characters to simplify his diagnosis or allow for fantasies of rescue. The decision was what type of death we wanted. #youknowme
iPhone : Hannah💎Lil Lazer BeamNashvilleResistJeff How we wanted our son to die: heart crushed in utero at later gestation by overblown lungs? Starved of air after birth and then hooked up to machines until we withdrew them? I never wonder if he would have made it because it was clear he wouldn’t. When he was
iPhone : Hannah💎Lil Lazer BeamNashvilleResistJeff Tests at the top children’s hospital in the nation, but were told by the fetal surgeons there that this wasn’t something they could fix or treat. So, long answer, no—this wasn’t about a disability that could be managed or amended. This was about
iPhone : Hannah💎Lil Lazer BeamNashvilleResistJeff I miss him terribly and I wonder what his life would have been like if he hadn’t had the disorder (which was both structural and chromosomal. The lack of airway was one of the many signs of the chromosomes gone haywire). We went for multiple opinions and...
iPhone : D This will be my sole reply to you about this. My husband and I sought agonizing second and third opinions, fetal MRI, fetal echo, level 3 ultrasound. This was not an inconclusive ultrasound. I forgive your ignorance.